Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

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Be excellent to each other
Absolutely no ableism.
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denying or minimising challenges faced by chronically ill people. This is a support group, not a place for people to spout their opinions on disability.

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Tips for chronic pain (pawb.social)

submitted 2 months ago* (last edited 2 months ago) by street_cat@pawb.social to c/chronicillness@lemmy.world

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I have recently discovered that I am hypermobile but social anxiety and the pain prevent me from going to a doctor (also I don't trust them and they scare me) Do you have any tips on living with chronic pain? Anything from over-the-counter drugs and physical aids to tips for everyday tasks I know I'll have to talk to a doctor someday but in the meantime I'd like to be able to survive lol

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[–] DavidGarcia@feddit.nl 1 points 2 months ago (1 children)

Boswellia+Curcuma or (pharmaceutical grade) lavender essential oil, collagen+hyaluronic acid, mineral supplements all help me personally.

In general I would recommend getting extensive blood work done to see if you have any nutrient deficiencies or other easily detectable abnormalities. That is a low-effort objective first to help relieve a lot of issues, that doesn't require you to visit a million doctors.

Even if you live as healthily as can be, it's possible you can't properly uptake or process some nutrients, for whatever reason. So it's alway good to check it out.

For example a variation of the MTHFR gene can lead to abnormal folate levels and cause hypermobility. But it could also be due one of many other causes, many of which you could sus out with blood work.

Most people are deficient in something or another anyway, like Vit D, Bs, Iodine, Minerals, etc. So it never hurts to check it out. Even if it doesn't help you with this issue, it might help you in other ways.

[–] street_cat@pawb.social 2 points 2 months ago

Thanks! Yeah it should definitely be easier than going to a doctor, as a first thing :)