this post was submitted on 30 Jul 2024
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Chronic Illness
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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
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- Be excellent to each other
- Absolutely no ableism.
- No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
- No denying or minimising challenges faced by chronically ill people. This is a support group, not a place for people to spout their opinions on disability.
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I would genuinely rather work with a doctor who just got divorced than have to fight the invisiable AI blackbox that calls me a drug addict for being chronically ill.
Unlike Narxcare, which just denies care due to biases and won't tell you why because it's a machine learning blackbox. There is no "paper trail" for NarxCare, because denying care to patients is the point. I can at least argue with doctors, or request a new one.
You can't fix social issues with technology, and every attempt will just make things worse for the affected people.