Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

Rules

Be excellent to each other
Absolutely no ableism.
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denying or minimising challenges faced by chronically ill people. This is a support group, not a place for people to spout their opinions on disability.

founded 4 months ago

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mecfs@lemmy.world

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Tips for chronic pain (pawb.social)

submitted 2 months ago* (last edited 2 months ago) by street_cat@pawb.social to c/chronicillness@lemmy.world

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I have recently discovered that I am hypermobile but social anxiety and the pain prevent me from going to a doctor (also I don't trust them and they scare me) Do you have any tips on living with chronic pain? Anything from over-the-counter drugs and physical aids to tips for everyday tasks I know I'll have to talk to a doctor someday but in the meantime I'd like to be able to survive lol

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[–] SoleInvictus@lemmy.blahaj.zone 3 points 2 months ago

Sure! You should be able to direct message me here and we can figure communication out from there.

And my pleasure! I'm an EDS advocate because it's an under reported, poorly understood, and often poorly treated condition, so figuring out if you have it and figuring out what to do afterwards can be terrifying. I'm hoping to save at least a few people from the trial by fire that so many of us have gone through.