this post was submitted on 17 Sep 2024
337 points (97.2% liked)
Chronic Illness
223 readers
106 users here now
A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
Rules
- Be excellent to each other
- Absolutely no ableism.
- No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
- No denying or minimising challenges faced by chronically ill people. This is a support group, not a place for people to spout their opinions on disability.
founded 4 months ago
MODERATORS
you are viewing a single comment's thread
view the rest of the comments
view the rest of the comments
Not only am I in pain, I'm also feeling guilty about it and the fact that I'm resting so much. I really try not to, but it's almost impossible.
Mornings are the worst for me and I still feel half dead even after 10 hours of sleep (or more). I need about one or two hours to even be half awake. It's hard to open my eyes at first, let alone move. So I begin my day at noon and end it at 5pm or so. And I need breaks too, can't skip those.
This also limits my ability to get better, as I often don't have the energy to go to all of my doctors appointments. I force myself to go for a walk and do the exercises for my back, but everything where I have to leave the house for more than 30 minutes is difficult and often impossible.
For me, the worst part is, that I can't sit. I can do it 5 to 10 minutes and then the pain ramps up. You can't do shit without sitting.