this post was submitted on 27 Dec 2023
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[–] Rachelhazideas@lemy.lol 1 points 10 months ago (1 children)

I'm sorry you had to deal with that awful guy. Abuse of staff isn't something that you should tolerate, nor am I asking you to. All I ask is that patients are not profiled as this guy until they have proven otherwise.

This is a systemic issue, not something that you're expected to fix alone. I'm not blaming you for all the failings of a medical system that is understaffed, underpaid, and overcharged by insurance companies. I'm just asking that people who have suffered at the ER before be heard and believed. I have tried countless times explaining the extent of this systemic issue to medical professionals, and was met with skepticism and outright disbelief about the magnitude of this issue. The many anecdotal experiences from ER visit should give an idea of how common this is among ER visitors.

Yes, it's true that both sides are making assumptions here. However, patient assumptions that ER staff are capable of causing harm are there to keep themselves safe, and don't turn them into abusive patients. Discriminatory assumptions made by ER staff can turn them into abusive staff.

[–] medgremlin@lemmy.sdf.org 1 points 10 months ago (1 children)

What I have been trying to say is that we didn't make any assumptions about that guy. We treated him with the same standard of care and urgency that any emergent medical condition would warrant until we had proof that he was faking it and after he grabbed a nurse's breast so violently and so hard that the entire right side of her chest was bruised for a couple of weeks. We made no assumptions and only acted on his behaviors and proven medical condition.

The experiences you have had are horrible, but they are not universal. Unfortunately, the way the emergency medical system has been stretched to its limit lately means that the best the ER can do is to keep people from dying, and diagnose and treat the more straightforward conditions. For most of the more complicated and chronic stuff, there's very strict laws about how much medication for what duration can be prescribed by an emergency physician, and a significant amount of the time, the best we can do is make sure you're not actively dying and put in a referral to the specialists with a note that you should be bumped up the waiting list a bit depending on severity. Hell, even trying to admit people to the hospital isn't a sure bet these days because the inpatient departments are allowed to enforce their staffing-to-patient ratios, so the ER gets stuck trying to take care of inpatient and even ICU patients with ER resources for up to days at a time.

My somewhat glib comment about people not being aware of what counts as an "emergency" is very literal when it comes to triage. We do our best to treat everything that comes through our doors, but if there's not an immediate threat to life, limb, or permanent disability, there's pretty distinct limits on what we're able to do on a short timeline and what the hospital allows us to do for free. EMTALA stands for "Emergency Medical Treatment And Labor Act" and it dictates that anyone who turns up to an ER with an emergent medical condition that poses immediate threat to life, limb, or permanent disability will be treated and stabilized to the accepted level of care regardless of ability to pay, and a mother presenting in active labor will be provided with delivery care or appropriate timely transfer to a labor and delivery department if appropriate regardless of ability to pay. There's very strict rules about the level of treatment to be provided and when or if transfer to another facility or provider is warranted and permitted, but past the stipulations of that law, it comes under the hospital administration's rules and regulations about what level of care can be provided by the emergency department.

I've seen quite a few physicians defy the hospital rules by ordering some of the special labs and tests that the specialist would order so that the results are already available in the system for when (if) the patient gets seen by the specialist, but they can get in quite a bit of trouble for it, and if it's not documented just right the patient's insurance might not pay for it. That's one of the other delightful limitations on what the ER can do...we have to toe the line on what needs to or should be done versus what the patient's insurance will pay for, because believe it or not, we really don't want to stick you with a bill for thousands of dollars of tests that your insurance denied coverage for.

Due to overwork, understaffing, antiquated training, and burnout, a lot of physicians' and nurses' bedside manner could use a fair bit of work, but in terms of the care provided, 99+ percent of the time, it really is the best we can do under the restraints created by laws, rules, resources, and insurance.

[–] Rachelhazideas@lemy.lol 1 points 10 months ago (1 children)

Permanently disability is exactly what happened to me and so many others when the ER refused to do anything because our pain is not taken seriously. The crux of the issue here is that you cannot 'see' how much pain someone is in and come to a conclusion how pressing their need for medical attention is without further investigation. I'm not asking ER staff to provide treatment beyond what they are supposed to, I'm asking ER staff to provide treatment of what they are supposed to.

The problem is that what constitutes as a medical emergency isn't dictated by patient's pain or symptoms, it's dictated by the medically unsubstantiated biases and preconceptions of medical professionals because patients are presumed drug seeking to be and unreliable witnesses to their own bodies even with clear documentation of prior medical conditions.

[–] medgremlin@lemmy.sdf.org 1 points 10 months ago (1 children)

Per the laws involved here, "permanent disability" means something like paralysis from a spinal injury, or loss of organ function due to acute critical illness like a necrotic bowel or something. Unfortunately, according to the medical and legal literature on the topic, disability from pain or chronic disease is beyond the required services of an ER. Arguments can be made for acute-on-chronic situations like splenic damage or rupture in sickle cell crisis, but those areas can get pretty fuzzy.

[–] Rachelhazideas@lemy.lol 1 points 10 months ago (1 children)

That's a shame. Under disability law, permanent disability is legally defined as a loss of mental or physical function to the point of significantly reducing one's ability to work or perform daily activities for an indefinite period.

It's ironic that medical disability considers the loss of a limb as a permanent disability but not permanent pain and suffering, because I'd gladly trade my leg to know what it's like not to be in pain again and to be treated like a person with a visible disability.

[–] medgremlin@lemmy.sdf.org 1 points 10 months ago* (last edited 10 months ago) (1 children)

I think you misunderstood. EMTALA defines disability in relation to an emergent condition, injury, or acute illness. The degradation of a chronic condition into a disability is not something that an ER can or should be trying to treat. Disability as a whole can include things like chronic pain in addition to other neuropathies, parasthesias, or paralysis, but the definition of "disability" in terms of emergency medical care is entirely related to the disability being caused by an emergency medical problem, not a chronic one.

[–] Rachelhazideas@lemy.lol 1 points 10 months ago (1 children)

I think you are the one misunderstanding here. The medical neglect during my ER visit is what caused my disability. I'm not asking to be treated for chronic pain at the ER, I'm asking to be treated so that I would not have become disabled.

[–] medgremlin@lemmy.sdf.org 1 points 10 months ago (1 children)

Unless you are obfuscating something, or there were some very unusual mistakes involved, I would think that medical neglect that caused a disability in an acute timeframe would warrant a consultation with a malpractice lawyer.

[–] Rachelhazideas@lemy.lol 1 points 10 months ago

Medical neglect causing disabilities is much harder to prove than you would think. There is always the benefit of the doubt that doctors are assumed to have tried their best to treat you and that it was a 'coincidence' that you happen to have acquired a chronic condition.

There's nothing unusual about women with abdominal pain being sent home from the ER untreated and berated for coming here 'for no reason'. Women are systemically denied treatment from the ER because every form of abdominal pain is downplayed to being 'just female abdominal pain'. I had severe abdominal pain and spotting when I went to the ER on a Friday evening. I had to wait 4 excruciating hours after an initial screening. Andoctor was finally available and I tried to explain that this wasn't just a normal period and begged to have it checked out, but he doctor wouldn't hear it. He sent me home with ibuprofen and Tylenol and told me not to come back unless it was an emergency.

The OTC meds did jack shit and I already told the doctor I tried ibuprofen before coming. I was left to stew for 3 days, crying, in excruciating pain, and vomiting until I was able to see urgent care on Monday. Those 3 days were the most painful days of my life at the time. At which point I was diagnosed with a hemorrhagic ruptured ovarian cyst through ultrasound that was 3.5 inches in diameter. I was sent in for laparoscopic surgery to remove the cyst. I though that would be the end of it, but that was just the beginning.

I have spoken to my PCP, rheumatologist, and pain therapist about this, and it was universally agreed that the 3 days of neglect and severe pain was a significant contributor to fibromyalgia. Had I been immediately treated, there was a good chance that I may not have ended up permanently in pain. But there is no way to prove it. Any doctor could just say that I would have gotten it anyway.

The ER experience and the pain was beyond traumatizing, but the best part is that this is just the first one. You see, once you have fibromyalgia nothing you ever say in the ER will be believed anymore. The next two times I went to the ER, once for vomiting 24 hours straight and not keeping any fluids down, and once for severe full body pain and a 105F fever, I would be met when even more disdain and disbelief than before. Both times I was told by the advice nurse to go to the ER, and both times I would be eye rolled or reprimanded by at least one person. Keep in mind that I have already had fibromyalgia at this point, and each time I visited the ER it was under severe pain. And each time I regret mentioning fibromyalgia at all because I could immediately tell the change in tone and the insinuations of how I was 'one of those' implying that I am a drug seeker. I had to beg everytime to be treated and to be taken seriously which was immensely difficult to do when I was already delirious from pain.

These people don't know what pain is like with this condition or that how many of us want to kill ourselves because we can't handle the pain and stigma anymore. I'm not telling people about this because I have some personal vendetta, I'm trying to warn people to take everything ER staff say with a grain of salt because ER doctors are human and humans are not immune to implicit biases, and medical misjudgments are often made at the expense of patients who don't fit their preferred demographic.