this post was submitted on 30 Jul 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 4 months ago
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discharge = discharge from hospital

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[–] bassomitron@lemmy.world 33 points 3 months ago (2 children)

TIL about MCAS. How horrible, I hope they can cure it someday.

[–] I_Miss_Daniel@lemmy.world 16 points 3 months ago* (last edited 3 months ago) (1 children)

I thought MCAS was the thing that was crashing the 737 Max 8 planes by pushing the nose down.

[–] BossDj@lemm.ee 11 points 3 months ago

No that's called short term gains

[–] SoleInvictus@lemmy.blahaj.zone 5 points 3 months ago

It's looking to be possibly more common than was thought, around one in twenty people, so you probably know someone with it. The symptoms vary significantly in type and severity. Some people are completely disabled, others have no idea they have it. I have it and mine is medium spicy - I can manage it with a shit ton of drugs and lifestyle changes. Still hoping for a cure as it fucking sucks.