this post was submitted on 30 Jul 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 4 months ago
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discharge = discharge from hospital

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[–] Kiosade@lemmy.ca 31 points 3 months ago

My wife has Endo, and many doctors failed to diagnose it. One even told her she couldn’t possibly have it, because it is a “complicated disease” (okay…? How does that mean she doesn’t have it, dumbass?).

Finally went to some fancy, private practitioner dude that is well known for his study in Endo. He did a simple pelvic exam and said rather casually “yep you have Endometriosis. It felt like you have rocks in your vagina”. APPARENTLY IT WAS SO BAD IT COULD BE FELT, BUT OTHER DOCTORS WERE TOO INCOMPETENT TO NOTICE.

Really lost a lot of respect for the average doctor after that.