this post was submitted on 18 Dec 2023
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Medicine

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This is a community for medical professionals. Please see the Medical Community Hub for other communities.

Official Lemmy community for /r/Medicine.


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Violations may result in a warning, removal, or ban based on moderator discretion. The rule numbers will correspond to those on /r/Medicine, and where differences are listed where relevant. Please also remember that instance rules for mander.xyz will also apply.

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[โ€“] Chetzemoka@startrek.website 4 points 11 months ago* (last edited 11 months ago)

I'm one of these patients. I was successfully treated for an autoimmune brain condition of some sort. To this day, none of our clinical testing has ever showed any abnormality. I was treated based on detailed medical history and my insistence that my self-reported symptoms be taken seriously.

It took months to find a physician willing to treat me, and I still to this day don't understand what they were so afraid of. My self-reports of symptoms, patterns of exacerbations, and positive response to corticosteroids were consistent and unequivocal.

I was in nursing school at the time, and I don't know if that helped or hindered me. But I finally figured out how to speak the language that my physicians could understand, even though I was the patient. That shouldn't be necessary.