Neurodegenative Disease Support

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This community is a gathering place for all those affected by neurodegenerative diseases. Patients, family, friends and caregivers are welcome. Share info, ask questions, or vent about your day. Whatever you'd like to talk about, we're here to listen.

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Do not ask for or offer medical advice. This is a community for support and encouragement only.

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ZenGrammy@lemmy.world

108beads@lemm.ee

Another resource on dementia: Being Patient (www.beingpatient.com)

submitted 1 year ago* (last edited 1 year ago) by 108beads@lemm.ee to c/neurodegdissupport@lemmy.world

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From their "about us" page: "'Being Patient' is an editorially independent news and community platform that aims to create clarity around complex health issues and be a trusted, accurate source of information for the people impacted by a disease."

Some good, apparently well-vetted info on Alzheimer's and related dementias. Emphasis on personal narratives from people with dementia, and from caregivers.

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