maryXann

joined 2 months ago
[–] maryXann@lemmy.autism.place 3 points 1 day ago (1 children)

Not speaking for all of them but sometimes just feeling good about yourself is enough. You can even tell them how you appreciate their efforts (assuming you do)

Reddit wasn't even always like that: I'd say it progressively went downhill during the last decade. Design choices were progressively made to tailor the most toxic users.

[–] maryXann@lemmy.autism.place 2 points 3 weeks ago

I do care. I totally get how you can be charismatic in school despite being autistic, that is perhaps the biggest misconception. I personally think if I had no morals and just wanted to make money my best bet would be running some kind of cult (but that would be wrong ofc).

[–] maryXann@lemmy.autism.place 4 points 4 weeks ago

I am a native French speaker who had a phase with an interest toward grammar, so I probably can help you with it if you are learning this language. Also I am quite good at explaining maths to kids or teens, even those with difficulties. It gets harder with adults.

[–] maryXann@lemmy.autism.place 6 points 1 month ago

The diag criteria are an ad hoc thing that only exists so that the society has a systematic way of deciding wether a given individual is autistic or not. Someone who just barely misses the criteria to be positevely diagnosed could very well have a lot in common with those who meet slightly more criteria.

Think of it like the administrative criteria to be considered "poor" in a given country: it helps to decide who can benefit from financial help and such, or to have statistics on how fair is the ressource distribution through the time, but it doesn't mean that your life will switch the very moment your income crosses the limit.

[–] maryXann@lemmy.autism.place 9 points 1 month ago

Hypersensitivity is its own thing but the comorbidity rate with autism is huge. I's also not always high pitches: personally I have issues with the air pressure, daylight, and many smells.

[–] maryXann@lemmy.autism.place 4 points 1 month ago* (last edited 1 month ago)

Oh, one call is already stressfull* for me, but I can manage it. Perhaps it would already qualify as "not comfortable". That said there is a gradation between your average "not your cup of tea but that's ok if you can take your time for it" and "risks having a meltdown in the middle of a phone call". It was dangerously close to that second category.

*Except those from that one person I'd marry if we weren't both 'commies' who think marriage is a thing of the past.

[–] maryXann@lemmy.autism.place 5 points 1 month ago

Good luck! Please tell us how it went, I hopefully will reach the same point as you at some point so your experience interests me.

 

I know it would sound stupid for most people, but not here (I hope?)

So I am in my early thirties and I have a long history of not going enough to the doctor. When I was a child my mother was my referent doctor and she always have been in the "no need to take medecine if it's going to heal by itself" school of thinking (I don't mean that in a bad way: I still got my vaccines, etc, just that she would directly send me to specialists when there was a serious issue). After I left the house I never cared about changing my referent doctor (although of course my mom who lived hundreds of kilometers away couldn't fill this role anymore) so I just stopped seeing any health professional.

As it appeared to me more and more obviously that I was autistic, I wanted to get a diagnostic (it is needed here in France if I want to have accomodations at work and such, also I would get some money that wouldn't hurt). Among all of the steps I needed to consult a doctor. I asked some people I know if they knew doctors who would take new patients, looked all over the internet, made way more calls than it was comfortable... but I couldn't find any. The only appointment I could get had a 6 months delay, plus it was with a substitute, and I was so stressed about it that I messed up the date and came the previous day... In the end I managed to get some papers I needed but nothing more.

About a month ago I was feeling a bit sick and I decided it was enough and I needed something to be done. All the doctors were full, as always, or didn't take new patients, but some were noted as on vacation but with a substitute (and said substitute didn't specify if they took new patients or not). Rather than calling to check, I decided to just get the appointment. At worst they would send me a mail to tell me my appointment had been cancelled or whatever. Still it was very stressfull.

Anyway, my appointment went very well and this substitute doctor was very nice. She told me she would open her cabinet next year and would be able to be my refferent at that point, but also that before that she could work as a "temporary refferent" for most stuff. She looks like a great doctor.

That's all! I hope it wasn't too boring to read through my ramblings.

[–] maryXann@lemmy.autism.place 3 points 2 months ago (1 children)

The one thing I like the least is A2. Seriously, once I had to sleep at a friend's house because I couldn't find my key, which was in my pocket all along. If said friend hadn't been there I probably would have slept outside.