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We Just Got More Evidence That Long COVID Is a Brain Injury (sciencealert.com)

submitted 2 weeks ago by just_another_person@lemmy.world to c/science@lemmy.world

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[–] Varyk@sh.itjust.works 12 points 2 weeks ago (2 children)

wow, thank you so much for the detailed answer, I'm fascinated chronic fatigue syndrome turned out to be a neuroimmune disorder.

is ME genetic or do you just get unlucky as far as we know so far?

[–] FundMECFSResearch@lemmy.blahaj.zone 18 points 2 weeks ago* (last edited 2 weeks ago) (1 children)

We don’t really know. But theres a giant GWAS (Genome Wide Association Study) called Decode ME with I think upwards of 25’000 pariticpants which is coming out in the next year. So we’ll know a whole lot more then. Hopefully it might lead to treatments.

[–] Varyk@sh.itjust.works 3 points 2 weeks ago

thanks, I totally slept on those developments.

that is very exciting

[–] jonne@infosec.pub 8 points 2 weeks ago (2 children)

Seems like it generally just gets triggered by a viral infection, but obviously it's hard to find conclusive evidence for that as people get viral infections all the time and usually recover fine. In a way COVID was a useful 'experiment' where we got a lot of cases of people getting long COVID right after a confirmed infection (because everyone was getting tested, which you typically wouldn't do for your average viral infection).

[–] FundMECFSResearch@lemmy.blahaj.zone 6 points 2 weeks ago (1 children)

Yeah. Atleast 50% report an onset right after a viral infection. And it’s not impossible to assume the other 50% were caused by viral infections too but the patient didn’t make the connection. Obviously we don’t really know yet.

[–] jonne@infosec.pub 2 points 2 weeks ago

Yeah, would be hard to prove unless people started routinely testing themselves for a broad array of viruses every time they fall ill.

But hopefully with the influx of long COVID patients more research will be done, and people with CFS, fibromyalgia and similar diseases will at least be believed, because all of those are typically dismissed because you can't really see it.

[–] Varyk@sh.itjust.works 2 points 2 weeks ago (2 children)

triggered or caused by?

fascinating, thank you.

that makes sense, we must have so much new data on how viruses affects humanity as a whole because of the global testing going on so long for so many people.

[–] Neurologist@mander.xyz 4 points 2 weeks ago (1 children)

Probably triggered. But we don’t really know.

[–] Varyk@sh.itjust.works 1 points 2 weeks ago (1 children)

what an exciting development we still have to look forward to.

[–] Neurologist@mander.xyz 4 points 2 weeks ago* (last edited 2 weeks ago)

Hopefully it’s something immunomodulators can fix. Fingers crossed.

[–] jonne@infosec.pub 1 points 2 weeks ago (1 children)

I mean, it's probably some sort of autoimmune thing, where the infection causes the immune system to go haywire and attacks your own body.

[–] Varyk@sh.itjust.works -1 points 2 weeks ago

That's so cool of immune systems, to sometimes do that.