this post was submitted on 12 Nov 2024
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Virologist Beata Halassy says self-treatment worked and was a positive experience — but researchers warn that it is not something others should try

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[–] 5715@feddit.org 8 points 6 days ago (9 children)

Can someone explain what ethical considerations are to be made here, except not to exclude proven treatments?

[–] Gaywallet@beehaw.org 17 points 6 days ago* (last edited 6 days ago) (7 children)

Ethically speaking, we should not be experimenting on humans, even with their explicit consent. It's not allowed by any credible review board (such as the IRB) and in many countries you can be held legally liable for doing experiments on humans.

With that being said, there have been exceptions to this, in that in some countries we allow unproven treatments to be given to terminal patients (patients who are going to die from a condition). We also generally don't have repercussions for folks who experiment on themselves because they are perhaps the only people capable of truly weighing the pros and cons, of not being mislead by figures of authority (although I do think there is merit of discussing this with regards to being influenced by peers), and they are the only ones for which consent cannot be misconstrued.

[–] Umbrias@beehaw.org 2 points 5 days ago (1 children)

i feel you are confused. internal review boards, of which there are many, regularly allow human trials. they are necessary for the fda's approval as well. there are tons of ways for patients to access ethically reviewed experimental treatments, but terminal patients are extremely likely to. you are correct that experimenting on onesself is often far less troubling though

[–] Gaywallet@beehaw.org 6 points 5 days ago

Sorry by experimental what I meant here is something which is not ready to be tested in humans - this scientist was skipping a bunch of the necessary steps to show this is a safe thing to do (in lab grown cells first, for example) to proceed to human experimentation.

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