this post was submitted on 23 Nov 2023
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baleeted
Can you get a patient advocate in hospital? I know some states have rules about patients asking for help after being refused.
I’m sorry you’re going through this, I spent years getting diagnosed with gastroparesis after many dismissals from specialists who didn’t even do the basic test. Was also told it’s stress, anxiety, psychological etc.
Anyway peg/j tubes are fairly standard things if one can’t eat /digest properly, what is their pushback reason on those?
Chronic pain is a hard problem to solve, pain specialists are super expensive and just seemed to push infusions or other medications rather than trying to work out the source. I had no success with them tbh. Have you read “explain pain”? (Apologies if you’re already aware of this and it’s not helpful).
baleeted