this post was submitted on 30 Jul 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

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  1. Be excellent to each other
  2. Absolutely no ableism.
  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
  4. No denying or minimising challenges faced by chronically ill people. This is a support group, not a place for people to spout their opinions on disability.

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discharge = discharge from hospital

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[–] SoleInvictus@lemmy.blahaj.zone 5 points 3 months ago (1 children)

Hey fellow MCAS person (well, their spouse)! I was reading your comment and was thinking "that's sure as shit MCAS". Surprise!

Glad her heel is doing better. If you ever need any MCAS advice, I've been managing mine for years and know a number of other folks with experience. I'd bet dollars to donuts we're all in the same geographical region too, so I may be able to recommend some doctors if needed.

[–] YtA4QCam2A9j7EfTgHrH@infosec.pub 5 points 3 months ago

Thanks for this. She is currently seeing a guy who collaborates with Molderings and Afrin. He has tons of publications and is spending a lot of time with her. She sent him a letter describing her illness because he was closed to new patients. He called her and talked with her for 2 hours on the weekend the day after he got her letter. So we’ve got the Dr thing covered.

She’s real bad. I am her full time care giver because the pain and sensitivities are so debilitating for her.