this post was submitted on 30 Jul 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

This is a support group, not a place for people to spout their opinions on disability.

Rules

  1. Be excellent to each other

  2. Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc

  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.

  4. No denialism or minimisation This applies challenges faced by chronically ill people.

  5. No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.

Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.

founded 4 months ago
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discharge = discharge from hospital

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[–] SoleInvictus@lemmy.blahaj.zone 5 points 3 months ago (1 children)

Hey fellow MCAS person (well, their spouse)! I was reading your comment and was thinking "that's sure as shit MCAS". Surprise!

Glad her heel is doing better. If you ever need any MCAS advice, I've been managing mine for years and know a number of other folks with experience. I'd bet dollars to donuts we're all in the same geographical region too, so I may be able to recommend some doctors if needed.

[–] YtA4QCam2A9j7EfTgHrH@infosec.pub 5 points 3 months ago

Thanks for this. She is currently seeing a guy who collaborates with Molderings and Afrin. He has tons of publications and is spending a lot of time with her. She sent him a letter describing her illness because he was closed to new patients. He called her and talked with her for 2 hours on the weekend the day after he got her letter. So we’ve got the Dr thing covered.

She’s real bad. I am her full time care giver because the pain and sensitivities are so debilitating for her.