Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

Rules

Be excellent to each other
Absolutely no ableism.
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denying or minimising challenges faced by chronically ill people. This is a support group, not a place for people to spout their opinions on disability.

founded 3 months ago

MODERATORS

mecfs@lemmy.world

graphito@sopuli.xyz

FundMECFSResearch@lemmy.blahaj.zone

809

Let's put her on saline & discharge right away (files.mastodon.social)

submitted 3 months ago* (last edited 3 months ago) by graphito@sopuli.xyz to c/chronicillness@lemmy.world

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discharge = discharge from hospital

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[–] YtA4QCam2A9j7EfTgHrH@infosec.pub 5 points 3 months ago

Thanks for this. She is currently seeing a guy who collaborates with Molderings and Afrin. He has tons of publications and is spending a lot of time with her. She sent him a letter describing her illness because he was closed to new patients. He called her and talked with her for 2 hours on the weekend the day after he got her letter. So we’ve got the Dr thing covered.

She’s real bad. I am her full time care giver because the pain and sensitivities are so debilitating for her.