this post was submitted on 15 Jul 2024
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Chronic Illness

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A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.

Rules

  1. Be excellent to each other
  2. Absolutely no ableism.
  3. No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
  4. No denying or minimising challenges faced by chronically ill people. This is a support group, not a place for people to spout their opinions on disability.

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submitted 3 months ago by mecfs@lemmy.world to c/chronicillness@lemmy.world
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[–] gangstamouse@sopuli.xyz 3 points 3 months ago (2 children)

I haven't had a migraine free day in at least 4 years. I have tried every migraine drug on the market. The only thing that works for me is Midrin. Which was discontinued in 2009. Good thing you can get it at a compounding pharmacy. Oh wait! You can't anymore. You can't get it anywhere. This last bottle on my desk is evidently one of the last in existence. And it's the only thing that works. So no, I won't just be taking the headache medicine. I've got to save it for when I have to function, not for when I want to feel better.

[–] SpaghettiYeti@lemmy.world 1 points 3 months ago

Have you seen this article? It gives you the component breakdown so you can try to find the 3 drugs that make it up, or you can try the alternative that has 2/3 of the drugs that is still on the market.

[–] Ephera@lemmy.ml 1 points 3 months ago (1 children)

Hmm, Wikipedia tells me:

However, it is now being manufactured by Macoven Pharmaceuticals and marketed under the name Nodolor, as of April 2014.

https://en.wikipedia.org/wiki/Amidrine

[–] gangstamouse@sopuli.xyz 1 points 3 months ago

Yeah, I know (I checked it before I posted on the off chance I'd find some good news). That page hasn't been updated in a while and I was only told there would be no more available back in April

[–] GBU_28@lemm.ee 1 points 3 months ago

... and a full glass of water.