A community/support group for chronically ill people. While anyone is welcome, our number one priority is keeping this a safe space for chronically ill people.
This is a support group, not a place for people to spout their opinions on disability.
Be excellent to each other
Absolutely no ableism. This includes harmful stereotypes: lazy/freeloaders etc
No quackery. Does an up-to date major review in a big journal or a major government guideline come to the conclusion you’re claiming is fact? No? Then don’t claim it’s fact. This applies to potential treatments and disease mechanisms.
No denialism or minimisation This applies challenges faced by chronically ill people.
No psychosomatising psychosomatisation is a tool used by insurance companies and governments to blame physical illnesses on mental problems, and thereby saving money by not paying benefits. There is no concrete proof psychosomatic or functional disease exists with the vast majority of historical diagnoses turning out to be biomedical illnesses medicine has not discovered yet. Psychosomatics is rooted in misogyny, and consisted up until very recently of blaming women’s health complaints on “hysteria”.
Did your post/comment get removed? Before arguing with moderators consider that the goal of this community is to provide a safe space for people suffering from chronic illness. Moderation may be heavy handed at times. If you don’t like that, find or create another community that prioritises something else.
In this thread you can vent, celebrate, both, or anything else and I'll root for you n_n
There are no small victories and very few definitive defeats \o
Been having a resurgence of nausea and mild pain. Probably gonna have to make a doctor's appointment soon, but there are few things I hate more than making appointments with specialists instead of just having my GP endlessly refill my prescriptions every three months.
C'est la vie.
Mood.
I'm riding a similar wave of pain/nausea due to increasing my methylphenidates recently. It's crazy how small things like this quickly end up being debilitating.
Do you have some kind of preventative/paliative treatment for your chronic issues or is it mostly symptoms treatment?
Edit: I wish you the best of luck! Doctors suck in general until you find a good one...
Preventative. They may have to up my med dosage. Not a big deal, but I hate going through the appointments anyway.
Yeah as long as you don't need to switch your meds and your chronic issue doesn't worsen it's ok to just get a refill.
It's nice to see you here and discuss something specific that impacts us rather than the generic / US politics sub where you're quite present n_n
Ninja Edit: If I had a say I'd rather not see you here if that meant you had no permanent health issue :p