this post was submitted on 01 Sep 2023
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Neurodegenative Disease Support

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I can't believe September has crept up on us already! I went on a road trip with my husband and my best friend a few weeks ago. The car ride was 10 hours long. I can't drive anymore, so hubby has to do all of it. I had to put many pillows around and behind me, and also ban air conditioning in the car unless the internal temperature was over 75 because it hurts so much when the cold air blows directly on my body. I enjoyed the trip and visiting with my friends. I hadn't seen them much at all since Covid started because it's often not safe and they don't put me at risk just for a visit.

Sometimes I'm amazed that my husband has stuck with me for so long given the fact that he would happily live in a refrigerator and I would happily live at over 80 degrees all the time. We make it work by having separate bedrooms. It's very important when you are "thermostatically incompatible" like we are.

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