this post was submitted on 05 Feb 2024
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neurodiverse

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What is Neurodivergence?

It's ADHD, Autism, OCD, schizophrenia, anxiety, depression, bi-polar, aspd, etc etc etc etc

“neurologically atypical patterns of thought or behavior”

So, it’s very broad, if you feel like it describes you then it does as far as we're concerned


Rules

1.) ableist language=post or comment will probably get removed (enforced case by case, some comments will be removed and restored due to complex situations). repeated use of ableist language=banned from comm and possibly site depending on severity. properly tagged posts with CW can use them for the purposes of discussing them

2.) always assume good faith when dealing with a fellow nd comrade especially due to lack of social awareness being a common symptom of neurodivergence

2.5) right to disengage is rigidly enforced. violations will get you purged from the comm. see rule 3 for explanation on appeals

3.) no talking over nd comrades about things you haven't personally experienced as a neurotypical chapo, you will be purged. If you're ND it is absolutely fine to give your own perspective if it conflicts with another's, but do so with empathy and the intention to learn about each other, not prove who's experience is valid. Appeal process is like appealing in user union but you dm the nd comrade you talked over with your appeal (so make it a good one) and then dm the mods with screenshot proof that you resolved it. fake screenies will get you banned from the site, we will confirm with the comrade you dm'd.

3.5) everyone has their own lived experiences, and to invalidate them is to post cringe. comments will be removed on a case by case basis depending on determined level of awareness and faith

4.) Interest Policing will not be tolerated in any form. Support your comrades in their joy!

Further rules to be added/ rules to be changed based on community input

RULES NOTE: For this community more than most we understand that the clarity and understandability of these rules is very important for allowing folks to feel comfortable, to that end please don't be afraid to be outspoken about amendments and addendums to these rules, as well as any we may have missed

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WHERE TO GET THE BOOK: http://libgen.is/book/index.php?md5=F6B31A8DAFD6BD39A5986833E66293E6

People have been kind enough to link the audiobook in past posts, so hopefully they'll do that here, too.

CHAPTER ONE: WHAT IS AUTISM, REALLY?

In this chapter, Dr. Price discusses what the popular perception (read: stereotype) of Autism is, as opposed to what it actually is, and how it is just as much a social thing as it is a medical thing. How Autism often goes undiagnosed in people of color, women, gender nonconforming people, etc. He discusses the concept of neurodiversity and how it applies to ASD and ADHD people, AuDHD people, schizophrenics, BPD people, people deemed "low intelligence" or "low-functioning," etc. and how neurotypicality is not so much a described set of behaviors as an oppresive social ideal that literally everyone deviates from in some small way at least.

There's a heartbreaking passage in here where Dr. Price recounts his father tearfully revealing his cerebral palsy and seizure disorder to him as if it was a source of secret shame, how this is tragically rational because if he didn't hide it it might lead to losing his job or other forms of discrimination that disabled people of all stripes face. How avoiding a label can be a social asset in a world that deems you unfit for public life in many ways if you're labeled autistic. How even a late diagnosis can open you up to a world of new possibilities, and get rid of toxic shame you've had for a long time.

There's discussion of how the stereotype of Rainman Bazinga Sheldon bazinga young-sheldon is tied into the roots of Autism's first descriptions in medical literature, and how Hans Asperger played a role in this with his eugenicist beliefs and willing cooperation with the Nazi regime to exterminate children dubbed Autistic (as opposed to "useful" ones that could be trained to fit in as a lower class of person -- essentially "Asperger's" meant you got to live) and how that harms minority Autistics, causing them to go undiagnosed or forcing them to mask in more fundamental, soul-crushing ways, to avoid social misunderstandings that can literally be deadly for them.

From there we get a medically and socially up-to-date definition and breakdown of what Autism is, a simple explanation of some of the neurobiology involved, the neurological markers like focus on details and diminished ability to prioritize and differentiate stimuli and delayed emotional processing, and the various medical, psychological, and social impacts Autism has on those who are Autistic. There's a lot in here on neurodiversity, intersectionality, how stereotypes were formed, how to start recognizing them as such. There's also a lot on how unfairly the medical community and especially health insurance treats neurodivergent people, and so on.

Most importantly, this is where Dr. Price first advocates for the notion of Autistic self-determination. He stresses "self-determination" or "self-realization" over "self-diagnosis" because of the social aspect of Autism, and promises to expand on this notion further, which indeed he does.

So, discussion questions:

  • What did you think of this chapter? Is there anything new you learned? Anything that really activates those almonds, gets the noggin joggin'?
  • Are there any passages that really stuck out to you? Something you think warrants deeper discussion or really crystallizes something you were struggling to express or share?
  • Any certified "literally me" moments that touched you? denji-just-like-me k-pain
  • Anything you hope to explore further in upcoming chapters?

Tag post to follow, plus my thoughts in another post.

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[–] BreadMaster5000@hexbear.net 1 points 7 months ago (1 children)

What did you think of this chapter? Is there anything new you learned? Anything that really activates those almonds, gets the noggin joggin'?

Well this chapter essentially deconstructed my general thought process, so that was uuuuuh, kind of a special? It prepared me for my diagnostic process... My GP referred me to what ended up being a pediatric clinic for ASD, which was a bit discouraging.

Are there any passages that really stuck out to you? Something you think warrants deeper discussion or really crystallizes something you were struggling to express or share?

The entire passage about children learning to hide their autistic traits from a young age, having their parents not getting a diagnosis to help their child "rise above" their limitations. I was a really sensitive child, I was bullied until I forgot how to be myself. I got scolded in class for not listening, even if I already understood everything. Even if my teacher recommended it, my parents didn't want me to get diagnosed for ADHD because they didn't want me to use it as a "crutch". I'm still struggling to understand how society only recently learned that the long-lasting effects of not getting a diagnosis to get the proper help can really mess with people and that we still need help even if we manage to "swim" and survive.

Any certified "literally me" moments that touched you?

Most of us have to figure out ways to conceal our stimming and special interests. We might maintain a secret blog about our interests, for example, or find socially acceptable ways to get our energy out, such as long-distance running or fidgeting with our phones.

As an ultra-trail runner, I was screaming in my car when I heard that quote in the audiobook. I got into ultra-endurance sports because it made me find peace with myself, made me feel accepted and I could be intense about it without it being too weird.

[–] FourteenEyes@hexbear.net 1 points 7 months ago

thanks for sharing