this post was submitted on 16 Sep 2024
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I got a diagnosis today after trying to figure out what's wrong with me for twenty years. My grandmother died at a relatively young age of lupus complications and she had to end her whole career at 36 because she was so sick. I'm 27, and I am terrified I'm going to end up like her. Her quality of life was absolutely awful for the entire time I knew her. I don't want that for myself.

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[–] roofuskit@lemmy.world 6 points 3 days ago

I've been on hydroxochloroquine for over a decade. Other than having to increase the frequency of opthalmologist appointments the longer I'm on it, it's done nothing but improve my life.