this post was submitted on 20 Jul 2025
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[–] Bottom_racer@aussie.zone 2 points 1 week ago (1 children)

Oh missed this reply sorry.

The thermos thing is a really good idea. I'm going to try that. Thank you.

Thankfully asking about nausea / bowel things is pretty standard.

Quickly feeling full is a struggle. To my mind with how little she's eating it happens very quickly.

I think one of the problems is just how many people she's seeing. Problem is they don't all speak to each other.

Ol' boy is the one managing it on a macro level, but I'm trying to get everything to fit together day to day as it's a bit chaotic.

For example, w/ her eye pressure meds (this is to prevent total blindness), can only take a few of them with food, but they interact w/ each other so you have to space them out. When you have random food refusal.. it's just super difficult to get it into a schedule. It's a bit frustrating lol.

[–] melbaboutown@aussie.zone 2 points 1 week ago* (last edited 1 week ago)

Believe me I know it. Food refusal vs med schedule…

Maybe just a spoonful of peanut butter. If there’s difficulty swallowing (or it would be painful for her mouth to manage) then try a bit of peanut butter thinned with yogurt, or just straight up yogurt. Even a shot glass or tablespoon worth of a soft food is at least something. Vaalia do tiny tubs or there are yogurt pouches she can hold by herself.

If she doesn’t do sweet stuff plain yogurt is an option, or baby food is another thing that comes in pouches. It’s not dignified to eat baby food but she will have the option to feed herself. There’s also thinned cream/cottage cheese or different types of dips.

Also she doesn’t have to finish the whole thing the same day. A tub or jar can last a few days in the fridge if you cover it and use a clean spoon each time. A pouch can be squeezed onto a spoon.

Ensure comes in neutral flavour now if too much sugar makes her nauseous. It still contains oligosaccharides which can upset your stomach a bit but they will be helpful to keep her stomach moving when she isn’t eating a lot. Diluting it will help.

Hang in there. It’s not really realistic that her team would have meetings but hopefully there’s some way for them to talk to each other.