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submitted 11 months ago* (last edited 11 months ago) by wildeaboutoskar@beehaw.org to c/chat@beehaw.org

Keeping the weekly post warm until @alyaza comes back ๐Ÿ™‚

What's everyone been up to? Any plans for the weekend?

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[-] YourHeroes4Ghosts@beehaw.org 5 points 11 months ago

Thanks for the kind words. When I say I feel like I'm suffocating, I mean that I feel like I can't exhale properly, which to me feels like suffocating. But it's only my first night with the machine and I don't intend to give up. Ramp is turned on, and the device says I have the nasal pillows placed properly. The device has an SD card and I plan to install OSCAR to get better data, but because of the way the system works where I live, it's better for me not to take out the SD card every single day if I can avoid it (I don't own the machine, it belongs to the health service).

[-] jlarex@beehaw.org 5 points 11 months ago

Try experimenting with turning off the ramp. I always felt like I was struggling to breathe until I turned off the ramp on mine, it was so much easier to breathe with it turned off.

[-] YourHeroes4Ghosts@beehaw.org 3 points 11 months ago

I think that may be a good idea, because I noticed that when I get up in the middle of the night to use the bathroom, then come back and reattach the hose, the higher pressure is actually more comfortable.

Last night I slept a little better and didn't push the nasal pillow off in my sleep, so there's some progress.

[-] fortified_banana@beehaw.org 3 points 11 months ago

It definitely takes a bit to get used to that, especially on the exhale. I found that it became better over time, especially once I was able to stop focusing on the mask and my breathing. I don't use the ramp up personally, as I find it more comfortable for me. Definitely keep at it, and you should be able to talk to your provider if you keep having issues. I had to go through a few settings/mask types to find the right one.

this post was submitted on 08 Aug 2023
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