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A community for comrades to chat and talk about whatever doesn't fit other communities
I do not suffer from any debilitating disability so feel free to disregard my opinion below.
My mother's doctor told her track her symptoms in a journal, it allowed them to get a better understanding of the situation and it got referenced in her medical chart as well.
This, so much this! My wife fought for like 10 years to get her gallbladder removed because nobody believed her. I went with her a couple of times and they'd ask symptoms and she would regularly forget to list important things and I'd remind her. I eventually got her to keep track, it finally got through the fog for a provider that referred her to the right specialist. She's quite a bit better now.
Second example: I have Celiac disease, I just found out last week. (I was so used to how I felt when eating gluten that I didn't realize it was happening unless I overate or drank beer). I had always had random little things that would pop up (dermatitis, high liver enzymes, etc). Because I kept track, when I recently had my vertigo attack, I saw some other signs that made me ask for a test.
Long story short, journal EVERYTHING because any little symptom might not make sense in the moment but might be the key to finding the problem and actually fixing it.