No cure, blood test, or scan usually means its not a clearly defined illness, just a symptom. You don't say someone having a heart attack and someone shot in the chest have the same syndrome just because they both have chest pain.
this post was submitted on 10 Dec 2023
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There’s a whole bunch of autoimmune diseases that have no cure, no specific blood test and no specific scan to diagnose them - but they are illnesses/diseases. Lupus is just one of them.
Not to things like mental health issues. You can't just scan someone for depression.
but they are illnesses/diseases.
They are described as that but that doesn't make it particularly scientific, or at least how most people define it.
I'm not saying all illnesses with no cure, blood test, or scan are inaccurately described or diagnosed, but I am saying it's a pretty good sign. I experience pretty bad Raynaud's(doctors thought it could've been Lupus but I don't have other symptoms) but that isn't enough information to describe an illness, because there are many things that could cause that- describing a symptom or group of symptoms as an illness implies there's some sort of common cause and treatment, other than just treating the symptoms. Until that is found you can't really know it's a shared illness, just a shared symptom.
This is already a major criticism of how mental health disorders are diagnosed
I'm well tired actually.
Is something that affect 1% of people really not rare? Seems like an odd classification.
Ya 1% is pretty rare in my opinion. Ever play a video game trying to get loot with a 1% drop rate? Takes fucking forever.
You could maybe argue in a medical context it's just uncommon, but that doesn't seem headline worthy vs rare.
It seems like classifications differ between regions. In the US, an illness is rare if it affects fewer than 200,000 Americans. In the EU it's less than 1 in 2000 (or less than 0.05%).
So no, 1% isn't anywhere close to rare.
Damn. Such a bad luck to have this illness.