this post was submitted on 17 Apr 2025
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He intentionally dodged ethical review and the law, the consent forms he had the parents' sign obfuscated the nature of the treatment, the experimental treatment offered no benefit over the currently used treatment to prevent HIV transmission from the father (sperm washing), the parents likely only agreed because the law prevented them from otherwise having biological children (IVF isn't available to HIV+ patients in China), the high risk of modifying non-target genes was well known, and he knew that the gene he introduced is believed to be linked to neurological differences.