this post was submitted on 22 Jul 2024
102 points (95.5% liked)

chat

8190 readers
588 users here now

Chat is a text only community for casual conversation, please keep shitposting to the absolute minimum. This is intended to be a separate space from c/chapotraphouse or the daily megathread. Chat does this by being a long-form community where topics will remain from day to day unlike the megathread, and it is distinct from c/chapotraphouse in that we ask you to engage in this community in a genuine way. Please keep shitposting, bits, and irony to a minimum.

As with all communities posts need to abide by the code of conduct, additionally moderators will remove any posts or comments deemed to be inappropriate.

Thank you and happy chatting!

founded 3 years ago
MODERATORS
 

This stupid country just lets people fucking die and get disabled everyday. I'm sick of it. My tax dollars just go to killing and dismembering people abroad. Fuck fuck fuck.

top 50 comments
sorted by: hot top controversial new old
[–] hypercracker@hexbear.net 54 points 3 months ago (5 children)

I guess I will be the sole person to point out that "chronic Lyme" is viewed by the medical establishment as a pseudoscientific diagnosis. Not really interested in debating this but lotta people have no idea that it isn't considered a legit thing, so for our readers here ya go. Not to diminish peoples' suffering from whatever it is they're going through but it probably is not caused by being bitten by a tick several years ago.

[–] Self_Sealing_Stem_Bolt@hexbear.net 35 points 3 months ago (2 children)

The same medical establishment that only recently admitted that chronic fatigue syndrome was real and not something women were making up for attention? The same medical establishment that ignores and gaslights those of us with "invisible illnesses"? (I've been told my disablity isn't real by a doctor before and so have many others!) The same medical establishment that treats different races differently due to racist nonsense thats still taught in med school? The same medical establishment that does conversion therapy (torture) on autistic children?

Good thing they've never been wrong or caught lying before.

[–] hypercracker@hexbear.net 44 points 3 months ago (1 children)

Sure now do this analysis on the alternative medicine community

[–] somename@hexbear.net 9 points 3 months ago

Reminds of me of trans healthcare. It’s the Wild West in a lot of ways simply because doctors don’t give enough of a shit to “properly” do advanced studies of things. Like, we know the basic tools are safe, but a lot of bigger questions about medical patterns you fit, how longer term HRT might affect the body in one way or another, it’s a big unknown space, but a lot of doctors just shrug and ask what you really are and stop thinking there.

Like even something that’s sorta becoming a common treatment, like Progesterone still gets slapped with like “unverified” smears, despite years of reports through the grapevine, because again they can be added to actually do official research.

When I was closeted I heard some friends of mine at the time in med school joke about trans people, and basically say they taught absolutely nothing about them. Among other hurtful thing.

[–] glans@hexbear.net 26 points 3 months ago

TRUE

Lyme disease is a real thing but usually (especially in "left" context) when someone says "lyme" there is a 90% chance that is NOT what they are talking about. It's a conspiracy theory promoted by anti-science grifters to entice people to travel to spend weeks or months at retreats getting long term antibiotics infusions or whatever else.

The suffering on the ground is real but total misdirection. It's kind of like the satanic panic or something.

I posted recent recent clinical practice guidelines, this stuff is addressed in there. They know its fake.

AFAIK lyme disease has a pretty good prognosis assuming you have access to health care. And if you don't that is a different thing and whether "they" do know how to treat it or not, doesn't matter much to you .

[–] KobaCumTribute@hexbear.net 25 points 3 months ago

I guess I will be the sole person to point out that "chronic Lyme" is viewed by the medical establishment as a pseudoscientific diagnosis.

The idea that disease infections can cause permanent organ damage and ongoing health problems even after the disease itself is gone is, bafflingly, something that's only started being accepted since covid started doing that on a big enough scale that researchers a) had no choice but to acknowledge it, and b) started getting a little funding to go and look to see if other diseases also did that sort of thing as well (they do, it's just covid is particularly bad about it and also extremely contagious).

[–] Chronicon@hexbear.net 19 points 3 months ago* (last edited 3 months ago)

To add a bit more context: Its not as simple as "chronic lyme is fake", because literally like 10% of lyme disease cases will have lingering symptoms after treatment. To distinguish it from quacks who say anyone with vaguely similar symptoms must have chronic lyme (even if there's no evidence they had a lyme disease infection in the first place), scientists refer to it as PTLDS (Post-Treatment Lyme Disease Syndrome).

If the person actually had lyme disease to begin with, it may well be PTLDS symptoms, and may well be helped by a second course of antibiotics. If they didn't actually confirm it was lyme though, or the lyme infection was years ago, it's way more questionable. Their symptoms probably aren't fake but they may well be getting taken advantage of by quack doctors, and making their health worse by continuing to take antibiotics for extended periods of time, etc.

[–] aaaaaaadjsf@hexbear.net 16 points 3 months ago* (last edited 3 months ago) (1 children)

Yeah "chronic Lyme" is not a real illness. Lyme disease is very much real obviously, but not chronic Lyme, which is usually used by quacks to sell snake oil, or as an excuse by celebrities to disappear from the limelight for a while.

[–] booty@hexbear.net 7 points 3 months ago
[–] FlakesBongler@hexbear.net 47 points 3 months ago (4 children)

"Why don't people go outside anymore?"

Your outdoor cats and pollution killed all the birds, your cars and traps killed all the possums and now the grass is filled with ticks which will give you a horrible illness if they bite you

Which they will because ticks are icky

[–] robot_dog_with_gun@hexbear.net 33 points 3 months ago (1 children)

i used to go outside to stack rocks but that's illegal now

[–] FishLake@lemmygrad.ml 25 points 3 months ago (1 children)

Outdoor cats (that are not properly managed, like used as mousers in a barn) are walking ecological disasters.

[–] Blockocheese@hexbear.net 16 points 3 months ago (1 children)

Even in barns they can still kill non pest animals while spreading T gondii

Barn owls for the win

load more comments (1 replies)
[–] krolden@lemmy.ml 9 points 3 months ago (1 children)

Release tick eating animals and start killing more deer

[–] newerAccountWhoDis@hexbear.net 7 points 3 months ago

Release tick eating animals and ~~start killing more deer~~ stop killing wolves and coyotes. Also ban cars and glass facades

load more comments (1 replies)
[–] Othello@hexbear.net 37 points 3 months ago* (last edited 3 months ago) (2 children)

there used to be a vaccine for lymes disease that was like 80% effective but it wasn't profitable so now we don't get it

[–] glans@hexbear.net 37 points 3 months ago (2 children)

they give it to pets. it's the same vaccine. the costs of getting through regulation for humans was too much and not worthwhile.

people who think vaccines are a money making plot needs to get get their heads screwed back on. so many vaccines held back because of being insufficiently profitable.

[–] casskaydee@hexbear.net 12 points 3 months ago (3 children)

people who think vaccines are a money making plot needs to get get their heads screwed back on. so many vaccines held back because of being insufficiently profitable.

Doesn't that necessarily mean that the ones that aren't held back are profitable?

[–] glans@hexbear.net 14 points 3 months ago* (last edited 3 months ago)

Meh. Not much. None of the companies really want to do it anymore. Vaccine development is just not compatible with capitalism. Remember that even mass vaccination campaigns are generally only 1-5 lifetime doses. Behind every newly-scheduled vaccines (something that happens every 5-10 years) there are 1000s of research avenues that went nowhere, or nowhere lucrative. They cost to develop, test, deploy etc. And the benefit is dispersed, in the future, and not obvious to individuals. A quintessential collective good; must be done at scale.

Look into the Ebola vaccine: it was 90% ready to go for a decade and almost ended up in the same situation as the Lyme vaccine: abandoned because no pharmaceutical business (or military) was willing to pay for the costs of the final approval processes. There is FINALLY a malaria vaccine.

If vaccines were developed as ambitiously as they could be imagine what we could have them for: acne, UTIs, ear infections, common cold, STIs, cold sores, h pylori, MRSA, c diff, parasites, a real TB vaccines, HepC, HIV etc. And that is just thinking about life here in chilly first world nations. Last few years have seen an uptick of finally approved vaccines for tropical diseases like chikungunya and dengue fever which is great.

none of that shit will be profitable

[–] Justice@lemmygrad.ml 8 points 3 months ago (3 children)

Yes, you are correct.

But all of this is just an argument for government researchers designing vaccines, testing them, etc. and the government owning all the patents and such. And I'd go a step further and wish the US government would then publish their findings, results, etc. freely and publicly and encourage all other nations to do the same. The US gov could hold the patents within the US for one discovered here (to prevent private corps from trying to gobble them up) but allow anyone worldwide to manufacture vaccines freely. Like with covid so many people suffered and died because Moderna, et al. desperately just HAD to make maximum profits. As a corporation, that's what they do. And when people started discussing forcing them to make the patent public, Bill Gates shit his diapers and everyone stopped talking about it (it was non serious to begin but he killed it totally)

load more comments (3 replies)
load more comments (1 replies)
[–] ScrubsFloorsInHyrule@hexbear.net 19 points 3 months ago (2 children)

Thought I read they're in stage 3 of trials for a Lyme disease vaccine now. Idk, too lazy to look up the legitimacy.

load more comments (2 replies)

I wish we could go in the woods without fearing for our health. As I begin to understand the ecological causes of the proliferation of this and other diseases like Chronic Wasting Disease in America, it is setting in for me that American settler colonialists and later iterations of land developers seriously destroyed the balanced of North America's ecosystem.

[–] krolden@lemmy.ml 33 points 3 months ago

When touching grass backfires

[–] glans@hexbear.net 31 points 3 months ago (1 children)

Assuming you are talking about actual Lyme Disease, it's a bit confusing because there seems to be a fairly well established treatment protocol. Here is oodles of stuff about it.

2020 Guidelines for the Prevention, Diagnosis and Treatment of Lyme Disease by Infectious Diseases Society of America, American Academy of Neurology, and American College of Rheumatology

[–] barrbaric@hexbear.net 12 points 3 months ago (5 children)

Spongebob might mean chronic lyme, which IIRC is dismissed by most doctors without further investigation.

load more comments (5 replies)
[–] brainw0rms@hexbear.net 31 points 3 months ago* (last edited 3 months ago) (2 children)

Yeah, this is very true. I have a theory that Lyme disease is responsible for a large segment of undiagnosed mental illness in the US. Many people don't know this, but you can develop severe schizophrenia or other mental illness symptoms after having it, even some time later. Has happened to people I knew.

I once looked into the bizarre subreddit communities which harbor those likely suffering from mental illness like r/gangstalking, and the various "morgellons" related (and adjacent) communities. A lot of those people have in common that they are either past/present abusers of stimulants like meth/dextroamphetamines, have had Lyme disease (sometimes more than once), or both.

[–] mar_k@hexbear.net 8 points 3 months ago* (last edited 3 months ago) (1 children)

would this be unlikely for those who've never experienced any noticeable symptoms after a tick bite?

load more comments (1 replies)
[–] I_CAST_BEAM_OF_BATS_I_CAST_BOLT_OF_BATS@hexbear.net 8 points 3 months ago (1 children)

That's horrifying schizophrenia is worse than tinnitus you're gonna hear a demon man yelling insults at your door at 4am and knowing for sure it's fake won't make it stop

load more comments (1 replies)
[–] NephewAlphaBravo@hexbear.net 29 points 3 months ago* (last edited 3 months ago) (2 children)

on the one hand, ticks carry lyme disease

on the other hand, ticks carry a disease that makes people allergic to red meat vegan-seitan

[–] Des@hexbear.net 21 points 3 months ago

apparently some people all meat.

forced feminization but for veganism

[–] SpiderFarmer@hexbear.net 8 points 3 months ago

I mean, the red meat thing is just one factor. It's a whole slew of other issues that come with the disease, but meat allergy is clickbaity. Arthro Pod did an episode on it, I believe.

[–] Feinsteins_Ghost@hexbear.net 28 points 3 months ago (2 children)

Lyme’s symptoms mimick other things like Alzheimer’s and fibromyalgia, making diagnosis difficult some times. Sometimes you need a ‘Lyme Literate Medical Doctor’ who specializes in tick borne illnesses to diagnose Lyme’s.

Early stage Lyme’s is treatable with NSAIDS and doxycycline antibiotics, comrade. According to a family member who is a FNP in Lyme territory, even the later symptoms are treatable.

I’m genuinely asking, is it a failing of Uncle Sam or a failing of medical science? I get the impression it isnt the government but I’m also a pretty dumb kind of guy so

[–] robot_dog_with_gun@hexbear.net 24 points 3 months ago (1 children)

fibromyalgia

iirc fibromyalgia isn't a specific thing either, just "lol chronic pain we can't figure out" but the insurance companies need a formal category to pay out

load more comments (1 replies)
[–] hexthismess@hexbear.net 19 points 3 months ago* (last edited 3 months ago)

I just skimmed a Harvard Health article that broke it down to a failing of the economic system, which in turn led to a medical failing due to lack of research / lack of time to diagnose. The article ends by saying that the organization of affected people and local doctors could lead to increased care.

Harvard Health article

[–] abc@hexbear.net 27 points 3 months ago (2 children)

???? how many people do you know are getting bitten by ticks

[–] MaeBorowski@hexbear.net 26 points 3 months ago* (last edited 3 months ago) (1 children)

Not OP, but around here, getting bitten by ticks is very common. Almost everyone I knew who liked being outdoorsy had been bitten at least once, and usually had several tick-bite stories. If you don't do a thorough tick check after every hike or jaunt into weeds or woods, you're playing roulette and will get one before too long. I myself have had to pull ticks out of me probably around 10-15 times (mostly as a kid when I was less careful when out hiking).

edit to add: Even when you're careful, ticks can still be easy to miss and you can still get bitten. The little fuckers are notorious for how sneaky they can be. I didn't mean the above to imply that someone who gets bit is at fault for not being careful enough, because it still can happen sometimes even when you take precautions, it just becomes much less likely.

[–] aaaaaaadjsf@hexbear.net 12 points 3 months ago

This is why I always wear long pants and shirts while on a hike. Learnt this lesson as a 15 year old during a 3 day 60km hike. Our group all got bitten by ticks sometime on day 2, walking though tall grass in shorts and short socks.

[–] mar_k@hexbear.net 8 points 3 months ago (1 children)

doesn't literally everyone who spends any time in a woodsy area gets them?? i got bitten like 6 times a year as a kid and got a couple last year

[–] keepcarrot@hexbear.net 6 points 3 months ago (3 children)

Bafflingly, I have never gotten a tick despite being in situations where everyone else does. Mosquitoes love me though :( (leeches and ticks seem to avoid me idk why)

[–] mar_k@hexbear.net 6 points 3 months ago* (last edited 3 months ago)

might be a regional thing, i looked this up and am deep in the blue:

can't really say this is clearly indicative of tick bites overall since i think our ticks are just more infected, but it's probably a combination of both

load more comments (2 replies)
[–] Ithorian@hexbear.net 22 points 3 months ago* (last edited 3 months ago)

I got lime about month ago, it's not fun.

load more comments
view more: next ›